Manchester Centre for Genomic Medicine is committed to improving our services by working with patients and families. Our patient advisory group contributes to education, research and service developments. We involve patients and patient representatives in research projects and the design, implementation and delivery of research for patient benefit. Patients contribute to our education programmes including the STP in Genomic Sciences (NHS Scientist Training Programme). One patient representative, Nichola Dean wrote:
“I got involved with the STP programme following a very positive experience with the genetics department when we were starting our family. It has been such a valuable experience to have been a patient and now be able to help out on certain projects and transfer over some of my professional skills. It is a very exciting time to be involved and I look forward to future projects.”
We work in partnership with the Public Events Programme at Nowgen for projects such as the 100,000 genome project.
We contribute to education at many support group days and regional patient events including:
MCGM patients share their stories to raise awareness around research and clinical trials. For example Wayne has shared his experience in taking part in a clinical trial to treat a rare genetic eye condition called choroideraemia.
If you are involved in the 100,000 genome project you may join our participant ambassadors group.
Research projects may be looking for patients to help in the design and planning of future research projects. If you would like to find out more about the research opportunities, please visit current research programmes.