Before you come to clinic, it can be really helpful if you can gather information about the condition in your family and your family history. In particular, please bring:
When we first meet you, the genetic doctor or genetic counsellor will draw together your family history. We understand getting all of this information may be difficult, but without it, it may not be possible for us to provide you with accurate information and/or a risk assessment. Please bring as much of the above information as you are able to find out. We understand some families have less contact with their relatives and some people are adopted. Don’t worry if you have less information about your family tree.