Dedicated clinics for individuals with genetic skin disease are held on the third Tuesday of the month at St Mary’s Hospital, Manchester. Both children and adults can be seen in these clinics. Our service provides diagnostic services and risk estimation for individuals, pregnancies and the extended family. We have close links with colleagues in Dermatology at Salford Royal Hospital.
Referrals are accepted from GPs, medical specialists, specialist nurses and healthcare colleagues throughout the north-west region. Referrals should be made via Dr Liz Jones.
The Ichthyosis Support Group (ISG) is a charity that supports anyone affected by Ichthyosis.
DEBRA is the national charity that supports individuals and families affected by Epidermolysis Bullosa (EB).
The Ectodermal Dysplasia Society is a charity dedicated to improving the health and well-being of people whose lives are affected by Ectodermal Dysplasia.