Companion Study

Full Study Name

Companion Study – Exploring Access to Genomic Research

Local Principal Investigator

Bella Starling

Study Status

recruiting

Main Aims

The aim of the study is to describe the demographics of participants participating in genomic testing studies in order to identify groups that may require additional support to access this testing in the future.

We wish to explore participants’ perspectives around barriers and motivations for genomic testing in order to develop education, engagement and dissemination strategies to improve access to testing in the future.

Inclusion Criteria

Adult participants affected with a genetic condition who have been recruited to a genomic research study

Parents of children affected with a genetic condition who have been recruited to a genomic research study

Consultees who represent the will of adults lacking capacity affected with a genetic condition who have been recruited to a genomic research study

Open Sites

MFT