Transition Service

The adult inherited metabolic disease service in this region is based at Salford Royal NHS Foundation Trust. This is a nationally commissioned specialist centre and as such accommodates patients across the UK and devolved nations. The department looks after patients with rare inherited metabolic diseases which include Lysosomal Storage Disorders (LSD) and general metabolic diseases. Many of the LSD patients are treated by Enzyme Replacement Therapy, which is administered at home and the LSD team are very well supported by a group of professional homecare companies.

The transition team from Salford Royal Hospital includes – a consultant in transitional health care, a specialist nurse with adult & paediatric background, a nurse with a learning disability qualification and a metabolic dietitian.

In order to facilitate smooth transition of patients from the paediatric service to the adult service, weekly transition clinics are held, which are run by the consultants in inherited metabolic disease from St Mary’s Hospital in conjunction with the adult team from Salford Royal NHS Foundation trust.

As patients approach their teenage years they are invited to attend specialist transition clinics in the Willink Unit. Typically patients will attend the transition clinics on at least 2 or 3 occasions before being transferred to adult care. Clinics are held on a Tuesday morning and dependent upon patient group are attended by one of the paediatric consultants, Dr Chris Hendriksz, Transitional Consultant in Adult Inherited Metabolic Disorders, Lorraine Thompson (Clinical Specialist Nurse RGN/RSCN) Briony McNelly (registered nurse with a learning disability qualification RNLD), specialist paediatric metabolic dietitian, Janine Gallagher and adult metabolic dietitian, Sarah Ripley.

Transition Clinics

One Tuesday per month a dietetic clinic is held. This is to assist in the transition of patients on specialist dietary management over to adult care.

An LSD transition clinic is held on one Tuesday per month.

On the other two Tuesdays per month transition clinics are held for non-LSD patients who do not require dietary management.

Approximately once every six months a Glycogen Storage Disease transition clinic is held which is attended by the paediatric clinical and dietetic team (Dr Simon Jones and Fiona White) and the adult teams as above.

The adult metabolic team includes consultant doctors, specialist nurse, nurses, specialist metabolic dietitians, research team, pharmacist, physiotherapists, health care assistant, and administrative staff.

Contact details for the Adult Team are given below:

Department of Adult Inherited Metabolic Disorders
Salford Royal Foundation NHS Trust
CSB, 1st Floor,  A Bloc
Stott Lane
Salford Manchester
M6 8HD

Appointments only: 0161 206 4365
Clinical helpline for patient enquiries: 0161 206 1899
E-mail: srh-tr.AIMD@nhs.net
Fax: 01612064036

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